Saturday, September 16, 2017

Actual Hospice

In the last post I said hospice isn't necessarily that bad.  It's true that hospice doesn't have to be, but at this point it is.

Basically, since I wrote that post on Wednesday, mom has been in a lot more pain.  She has some pressure in her brain and has been very constipated, both of which are painful. She hasn't been talking much except to say "please, please, please" or "daddy, daddy, daddy" when she is in pain (because we call Barry "daddy", that's what she's been calling him lately too).  We got permission this morning to put mom on a lot more pain meds, and someone from the hospital pharmacy is dropping off a pain pump to one of the VNA nurses, and the nurse will bring it to us this evening.  People who don't even know us are going out of their way to help out.

The plan as of now is that she'll be moving to Respite House on Monday.  We are looking forward to having other people worrying about meds and transfers and keeping her comfortable, so we can just enjoy being with her.  

They have warned us that once they put her on enough meds to really make her comfortable, the part of her brain that is fighting may relax a bit.  In other words, there is a chance that she could die in the next few days.  As sad as it is, it is so hard to see her in pain.  The priority is keeping her comfortable, and if that means she isn't struggling and fighting to stay alive, that's okay.

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